Mom raises money to help son with fatal genetic disorder cardiofaciocutaneous syndrome

A Bridgeport mother is trying to raise money to get help for her young son, who suffers from a rare and serious disorder. Michael Rodriguez,

Only about 300 people in the world suffer from the condition.

Only about 300 people in the world suffer from the condition. (3/14/14)

BRIDGEPORT - A Bridgeport mother is trying to raise money to get help for her young son, who suffers from a rare and serious disorder.

Michael Rodriguez, 6, has a genetic disorder called cardiofaciocutaneous syndrome, or CFC. 

Doctors tell News 12 that it causes, among other things, a narrowing of the artery going from his heart to his lungs. Only about 300 people in the world suffer from the condition. 

His mother, Ana Rodriguez, says he was not expected to live past 5 years old.

Rodriguez is trying to raise $4,000 so she can take her son to a CFC conference in Florida in July, in hopes that a specialist there can help him. 

"I want the world to know Michael, how brave he is, everything that he has achieved, all the challenges that he's been through," says Rodriguez.

More on this topic

Michael Rodriguez fundraising

Michael's CFC Syndrome Expenses

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