Mom raises money to help son with fatal genetic disorder cardiofaciocutaneous syndrome
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Michael Rodriguez fundraising
BRIDGEPORT - A Bridgeport mother is trying to raise money to get help for her young son, who suffers from a rare and serious disorder.
Michael Rodriguez, 6, has a genetic disorder called cardiofaciocutaneous syndrome, or CFC.
Doctors tell News 12 that it causes, among other things, a narrowing of the artery going from his heart to his lungs. Only about 300 people in the world suffer from the condition.
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His mother, Ana Rodriguez, says he was not expected to live past 5 years old.
Rodriguez is trying to raise $4,000 so she can take her son to a CFC conference in Florida in July, in hopes that a specialist there can help him.
"I want the world to know Michael, how brave he is, everything that he has achieved, all the challenges that he's been through," says Rodriguez.