NORWALK - A Wilton mother is putting together a fundraiser for her 10-year-old daughter who she says was born with a rare medical condition known as Smith-Magenis syndrome, or SMS.
Jennifer Iannuzzi says that soon after her daughter Sydney was born, doctors said her oxygen levels were abnormal. She says it took nearly two years of sleepless nights before doctors told her Sydney had the rare chromosomal disorder SMS, which means a critical piece of genetic material is missing.
SMS has caused Sydney to have developmental delays and cognitive issues. Iannuzzi says Sydney also has frequent tantrums.
According to researchers, about one in 25,000 people have SMS, and it's one of the reasons why Iannuzzi says she started her own foundation to raise money for research. Her SMS Research Foundation has so far raised more than $500,000.
The fundraiser will be held Saturday, June 18 at the Prospector Theater in Ridgefield.